A 12-year-old boy is experiencing a harrowing battle with a rare form of epilepsy, suffering up to 40 seizures in a single night. The case highlights the challenges faced by individuals and families dealing with complex neurological conditions.
Warre was diagnosed with focal epilepsy at age six, according to reports. His condition has led to debilitating episodes, as described in recent coverage.
“40 aanvallen op één nacht, dat is de hel,” – “40 attacks in one night, that is hell” – is how the situation has been described. The young boy’s experience underscores the severe impact epilepsy can have on daily life.
Benjamin De Ridder, an epilepsy nurse at UZ Gent, has been involved in Warre’s care, offering insight into how rare diseases are identified and treated. More information about diagnosing and treating rare diseases can be found here.
The story of Warre’s struggle with epilepsy comes as Belgium’s Minister Gennez seeks to address false health claims made by influencers. Details on the Minister’s initiative are available here. The case of Warre (12) was mentioned in connection with this announcement on February 9, 2026.
Despite the physical challenges, Warre reportedly remains mentally present, though unable to fully function during episodes. “Fysiek ben ik aanwezig, maar mentaal kan ik niets doen,” – “Physically I am present, but mentally I can do nothing” – he stated.
